Our Mission:

working to authentically educate, advocate, counsel, support and fund

research initiatives benefitting those impacted by Neurofibromatosis

BAND TOGETHER – A Virtual Concert for NF Research at UW

Sunday, December 20, 2020 at 6:00 PM CT

Join us for BAND TOGETHER – THE REBOOT, featuring multi-platinum singer/songwriter Phillip Phillips, Grammy Award winning band The Okee Dokee Brothers, plus local Madison and Rochester bands and more! Read more…


Help Support Cutting Edge NF Research

NF North Central is proud of our partnership with the University of Wisconsin-Madison’s NF Research Program, the most advanced, collaborative and cost-effective large animal model in the world!

The documentary series, “Super Human” by Freethink.com took notice of this amazing not-for-profit work being done by a dedicated researcher, who is also an NF dad.

Donate to this ResearchLearn about Research Efforts
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NF North Central helps support cutting edge biomedical research in fields relevant to neurofibromatosis.


Advocates participating in this program have been the voice of the NF community on Capitol Hill for 20 years, and have been instrumental in generating over $340+ million dedicated to NF research
NF North Central Hands Images Symbolizing Our Community


We are a part of the NF Network with over 18,000 members around the world. NF North Central helps families in our region connect online and in person to provide support, connections and education.


Whether you or a loved one is newly diagnosed or has been living with NF, we are here to provide educational information to help you.

What's new in the NF North Central Learning Center

Did you know?

NF is more common than Cystic fibrosis, Muscular Dystrophy, Tay Sachs and Huntington’s Disease … COMBINED!!

R.A.C.E.: Research, Advocacy, Community, Education

For whom do you R.A.C.E.?