How is NF Research Funded?

Since 1996, Congress has supported NF research funding at the Department of Defense (DOD) through 1) A Congressionally Directed Medical Research Program (CDMRP) called the Neurofibromatosis Research Program (NFRP) and 2) through the National Institutes of Health (NIH).

CDMRP NF RESEARCH PROGRAM

The Congressionally Directed Medical Research Program (CDMRP), run through the Department of Defense, was created in 1996.  It is a highly- and efficiently-operated national program which offers cutting-edge awards targeted directly toward Neurofibromatosis research.  The CDMRP utilizes a competitive peer-review process to fill gaps in ongoing research and complement initiatives sponsored by other agencies, such as the National Institutes of Health (NIH).

NATIONAL INSTITUTES OF HEALTH

The NIH, a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency, recognized for making important discoveries that improve health and save lives.

NIH institutes that conduct NF research:

National Cancer Institute (NCI), National Institutes of Neurological Disorders and Stroke (NINDS), National Institute of Child Health and Human Development (NICHD), National Eye Institute (NEI), National Institute on Deafness and other Communication Disorders (NIDCD), National Human Genome Research Institute (NHGRI), National Center for Research Resources (NCRR), National Heart, Lung, and Blood Institute (NHLBI), National Institute of Mental Health (NIMH), National Institute on Aging (NIA), National Institute of General Medical Sciences (NIGM), National Center for Advancing Translational Sciences (NCATS), and the Office of the Director (OD)

 

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RESOURCES

• Webinars for those impacted by NF
• Understanding Neurofibromatosis (ebook)
• Understanding Neurofibromatosis Type 2 (ebook)

 

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In Their Own Words