RACE to Fight NF

#JoinTheRace with NF North Central to stop NF by learning more about the following:

Get your Tix Today!

NF North Central Knock Out to Rock Out 2019

Did You Know?

The number of babies born with NF in the United States Every Day is 4

How is NF Research Funded?

Since 1996, Congress has supported NF research funding at the Department of Defense (DOD) through 1) A Congressionally Directed Medical Research Program (CDMRP) called the Neurofibromatosis Research Program (NFRP) and 2) through the National Institutes of Health (NIH).


The Congressionally Directed Medical Research Program (CDMRP), run through the Department of Defense, was created in 1996.  It is a highly- and efficiently-operated national program which offers cutting-edge awards targeted directly toward Neurofibromatosis research.  The CDMRP utilizes a competitive peer-review process to fill gaps in ongoing research and complement initiatives sponsored by other agencies, such as the National Institutes of Health (NIH).
cdmrp summary


The NIH, a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency, recognized for making important discoveries that improve health and save lives.

NIH institutes that conduct NF research:

National Cancer Institute (NCI), National Institutes of Neurological Disorders and Stroke (NINDS), National Institute of Child Health and Human Development (NICHD), National Eye Institute (NEI), National Institute on Deafness and other Communication Disorders (NIDCD), National Human Genome Research Institute (NHGRI), National Center for Research Resources (NCRR), National Heart, Lung, and Blood Institute (NHLBI), National Institute of Mental Health (NIMH), National Institute on Aging (NIA), National Institute of General Medical Sciences (NIGM), National Center for Advancing Translational Sciences (NCATS), and the Office of the Director (OD)