NF-2 Educational Resources

• Understanding Neurofibromatosis Type 2 John & Linda Manth and Scott Plotkin, MD, PhD
• Hearing Improvement after Bevacizumab in Patients with NF2 Scott R. Plotkin, M.D., Ph.D., Anat O. Stemmer-Rachamimov, M.D., Fred G. Barker II, M.D., Chris Halpin, Ph.D., Timothy P. Padera, Ph.D., Alex Tyrrell, Ph.D., A. Gregory Sorensen, M.D., Rakesh K. Jain, Ph.D., and Emmanuelle di Tomaso, Ph.D.
• Hearing Restoration in Neurofibromatosis Type II Patients Jeon Mi Lee , Jin Woo Chang , Jae Young Choi , Won Seok Chang , and In Seok Moon
• Cochlear Implants In NF2 Derald E. Brackmann, M.D. House Ear Institute Los Angeles
• Bullying Help Sheet Stopbullying.gov provides tips, resources, and legislation language to act on your child’s behalf in their school. 
• HOP NF2 Information Sources These websites and organizations are offered for the purpose of providing patients, families, and friends with information and resources that may be helpful in understanding NF2.
• Reproductive Options for People with NF Amanda Bernger, MS CGC, Johns Hopkins University
• Insurance Coverage Provided by NF Midwest
• NF Helpful Resources
• NF Network Brochure
• NF2 Body Sheet
• NF2 Children Mia MacCollin & Victor-Felix Mautner
• NF2 DNA testing
• NF2 Glossary
• NF2 Crew Brochure
• NINDS National Institute of Neurological Disorders & Stroke
• UAB Genetic Testing Brochure
• UAB Genomics Lab Website
• Understanding Neurofibromatosis Comer Children’s Hospital-University of Chicago
• Psychological distress in people with disfigurement from facial palsy School of Medicine, University of Manchester, UK

RESOURCES

• Webinars for those impacted by NF
• Understanding Neurofibromatosis (ebook)
• Understanding Neurofibromatosis Type 2 (ebook)

In Their Own Words