NF-1 Educational Resources

• Understanding Neurofibromatosis 3rd Edition James H. Tonsgard, MD
• NF Network Brochure NF Network
• Clinical Care Options NF Network
• Understanding Your Child’s Diagnosis of NF Washington University Physicians
• NF Buddies A child’s perspective of Neurofibromatosis
• Bullying Help Sheet Stopbullying.gov provides tips, resources, and legislation language to act on your child’s behalf in their school. 
• NF1 Body Sheet NF Network
• Clinical Manifestations Of NF1 James H. Tonsgard, MD
• NF1 Neurosurgery Webinar PPT John Hopkins
• Learning Problems In NF1 Scott Hunter, PhD, Jim Tonsgard, MD
• Insurance Coverage for Neurofibroma Removal NF Midwest
• Optic Pathway Gliomas Robert Listernick, MD Children’s Hospital of Chicago
• Vascular Disease in NF1 Cynthia Hingtgen, MD, PhD
• Reproductive Options for People with NF Amanda Bergner, MS CGC, John Hopkins University
• Neuropsychological Evaluations for Children with NF1 Jill Isenberg, PhD., ABPP; St. Louis Children’s Hospital
• Pain in Neurofibromatosis Type 1 Staci Martin Peron, PhD and Andrea Baldwin, CRNP
• NF Helpful Resources NF Network
• NINDS National Institute of Neurological Disorders & Stroke
• Primary Care For NF1 Leigh Hart, RN, CCRN, PhD
• UAB Genetic Testing Brochure Medical Genomics Laboratory
• UAB Genomics Lab Website UAB School of Medicine
• Information for Teachers NF Midwest
• Bequest Brochure

RESOURCES

• Webinars for those impacted by NF
• Understanding Neurofibromatosis (ebook)
• Understanding Neurofibromatosis Type 2 (ebook)

In Their Own Words