Gregg Erickson: My Perspective as a Neurofibromatosis Parent and Advocate (from the CDMRP)
My son, Gus, was diagnosed with Neurofibromatosis (NF) Type 1 as a baby. Having never heard of NF, my wife, Becky, and I did our research and quickly learned about all the horrifying physical and cognitive complications that NF can bring. And we decided to hope for the best.