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      • NF-1 Educational Resources
      • NF-2 Educational Resources
      • Schwannomatosis Educational Resources
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      • Stay iNFormed Sign Up
      • RDMD NF Registry Sign Up
      • NF Inspire Online Community
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      • NF North Central Board of Directors
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    • SCIENTIFIC PAPERS
      • The Network Edge Newsletter
      • Highlighted NF-1 Scientific Papers
      • Highlighted NF-2 Scientific Articles
    • PARTICIPATE IN NF RESEARCH
      • ClinicalTrials.Gov
      • NF Clinical Trials Consortium
      • Other NF Studies
      • RDMD NF Registry
    • NF RESEARCH PROGRAMS
    • PUBLICATIONS
      • Turning Piglets Into Personalized Avatars for Sick Kids
      • To help kids battling a rare disease, scientists forge a genetic link between people and pigs
  • Get Involved
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      • BAND TOGETHER – A Virtual Concert for NF Research at UW
      • Rock Out to Knock Out NF
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Tag Archives: weed

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NF-North-Central-Gregg Erickson speaking

REiNS Cutaneous Neurofibroma Working Group

NF StoriesBy adminDecember 12, 2018Leave a comment

When Gregg and his wife, Becky, learned their son has Neurofibromatosis 6 years ago, they took a common first step for parents after receiving an NF1 diagnosis:  they Googled “NF”.  Online search results revealed imagery of patients with a relatively high burden of cutaneous neurofibromas (cNFs).

NF Network Wisconsin Panel

Symposium leaves attendees hopeful

NF StoriesBy adminMay 19, 2017Leave a comment

More than 80 people attended the University of Wisconsin’s inaugural NF1 Symposium May 3. “It was a truly fitting way to kick off NF Awareness Month,” said Ryan Geier, a member of the NF Board of Directors.

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