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      • The Network Edge Newsletter
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      • Other NF Studies
      • RDMD NF Registry
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      • Turning Piglets Into Personalized Avatars for Sick Kids
      • To help kids battling a rare disease, scientists forge a genetic link between people and pigs
  • Get Involved
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Monthly Archives: December 2018

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NF-North-Central-Gregg Erickson speaking

REiNS Cutaneous Neurofibroma Working Group

NF StoriesBy adminDecember 12, 2018Leave a comment

When Gregg and his wife, Becky, learned their son has Neurofibromatosis 6 years ago, they took a common first step for parents after receiving an NF1 diagnosis:  they Googled “NF”.  Online search results revealed imagery of patients with a relatively high burden of cutaneous neurofibromas (cNFs).

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